About Me

What a journey!  I started this blog in the summer of 2009.  Thanks to a perceptive and loyal friend, I had an answer to a lifetime of asking why and why not and how and what I must have done wrong to cause such a mess yet again.  She encouraged me to start a blog–it was my world, too, she said, so use your writing to reach out to others.  Six years and hundreds of posts, speaking events, conferences, and many life-changing friends later, I have a contentment and a purpose I never knew possible

As of 2015, I’m 27 years old.  I have my B.S. in elementary education and my M.A. in English and creative writing.  Life through some curve balls in the form of my lifetime health issues becoming much more serious, ultimately diagnosed with mitochondrial disease.  I spent 15 months in a nursing home–autism plus the degree of medical care I need made it fully impossible for me to be on my own successfully.  An autism specialist said that I had hit my developmental peak when I was 21 and to consider a group home placement.

I am on my own now and absolutely thriving.  I’m still limited by my medical situation, but I have a lot of other things to keep my mind busy.  I work part-time at an autism nonprofit where I do the media work and spend time with the younger girls and families.  I write for various groups and sites, including Geek Club Books, The Mighty, Squag, Zoom Magazine, and Autism Asperger Digest.  I have spoken at local and national events.  The biggest thing has been the friends I’ve made along the way who always build me up and remind me that I have a community.

Thanks for stopping by, and have a look around to see where my journey started and how very far I’ve come.  I can’t wait to find out what’s next!

Baby Lydia; age 22 months

Baby Lydia; age 22 months

summer 2005; age 17

summer 2005; age 17

May 2009; age 21

May 2009; Age 21

Summer 2010; age 22

Summer 2010; age 22

Summer 2011, age 23

Summer 2011, age 23

Summer 2012, age 24

Summer 2012, age 24

July 2013; age 25

July 2013; age 25

28 thoughts on “About Me

  1. Lydia:

    Do you live in the United States or elsewhere? I was just wondering because your post today is dated June 1, 2011 – and it is still May 31, 2011 in the U.S.

    • Cindy, I’m in PA. I have no idea why it’s doing that or how to fix it. I’ll put it on the back burner and think about it another time… enough else to deal with right now! But thanks for bringing it to my attention.

  2. Pingback: ‘How do I know my child loves me?’ | The YAI Network’s

  3. I also write for a living (and love cats…and the Food Network); and I just have to tell you that you are such a pro. Your writing is so insightful and lovely. Thank you for sharing your light with the Internet!

  4. I just got your book Living in Technicolor: An Autistic’s Thoughts on Raising a Child with Autism on Kindle. Thank you for sharing your story and your words of wisdom!

  5. Yes! You are soooo Lydia! Unique and wonderful! I am so happy to have “found” you!! I have a ten year old with HFA/Asperger’s (confuses me too). You are a beautiful writer. Blessings!

  6. you are awesome,Lydia- i used to tell people Lydia was my name- because i loved winona ryder in beetlejuice and thats her name. I am an undiagnosed all sorts of things,married to an informally diagnosed aspergers,2 older ocd,odd,add boys 10,and 13 years old and recently my 2 year old was tentatively given asd diagnosis and a for sure sensory processing issue- he doesnt like to go into stores,which makes life even harder for my already mentally and physically clausterophobic isses. he also doesnt like to eat much at all..not to mention obsessions he cannot understand let alone try to work with. we have st and ot for starters and im educating myself- you are an inspiration…..oh,and i live for cats- i have 6 and they are so amazing!

  7. I was diagnosed with Asperger’s at 12, I adore cats and have had a few (none at present sadly, my mother is allergic). I was considered “brilliant” in elementary school but it never translated into any real academic success. I graduated from high school at 21, never went to college.

  8. I love your blog! I have a son who has autism and is considered high functioning but, like you, can slip into hour-long meltdowns depending on the situations. (Coincidentally, his birthday is also Dec 9th!! He just turned 7.) I just read a post you wrote about Israel being set apart for holiness and how God uses your autism for good, how He has kept you set apart from the yuck of the world. As a mom who is concerned about what my son will encounter as he gets older, your words were such an encouragement. Thank you so much!

  9. Lydia,so great to have found your blog.I came across a comment on WP that you made about regressing as an adult with autism. this has happened to my son who is going through a very difficult time .I think depression added to the autism has completely deskilled him. he struggles to make a cup of tea, and this was a boy who went to the US on his own for a holiday two years ago. I am desperately trying to find information on regression in adults with aspergers. My son was very mild aspergers growing up.If you have any leads or links to information on this I would be so grateful. It is so encouraging to see you have written a book. I saw that skills like driving have come and gone for you.This is exactly the same for our son and the professional help is not always helpful as you know!

  10. Adeerus Ghayan’s “Reducing Autism Poisoning Impacts” may be of interest to you. It talks about reducing autistic traits by cutting down on processed food and turning to organic vegetable and fruit diet. Book’s hypothesis is that chemicals in the food are leading to an increase in autistic traits. Book is a case study of an autistic toddler.

    • Hi Sami, I appreciate the suggestion, but I do not, in any way, believe that autism is caused by chemicals in our food. It is genetic. Not to mention, I don’t see reducing autistic traits as the goal any more than I see reducing female traits as a goal. There’s nothing to fix! I recommend reading books by autistic authors to get a view on how our brains work and why we’re, on the whole, pretty okay with the way we are 🙂

  11. hey! so I just (literally, like a few minutes ago) decided to start a blog and published a post and then I happened to find my way here. So far, I’ve only read your about section, and I love it! I’m assuming you’re Christian, I am too! 😀 I’ve struggled with depression for a bit too, but God makes miracles happen! I am all about being positive now and that’s what I’m trying to write my blog about, maybe infect some people with happiness as well 🙂
    anyways, best wishes to you!

    • I’m glad you hear from you and hope you enjoy blogging! I love the idea of a little happiness… there’s just nothing to be lost and so much to be gained by spreading it 🙂

  12. Hi! Let me start by saying how beautiful you are! I couldn’t wait to read this article that came across my FB news feed about you! I am a grandmother that has adopted my first of six grandchildren. Her name is Piper and she is a 15 year old Freshman. She came to me recently concerned that she may be on the spectrum. So I read everything I could about it. We are now waiting for an appt to begin the testing to see. She is very bright, always having at least a 4.0 GPA through school. She wants to study law in college and I believe she can do it! But like you she’s always struggled with making friends. She’s had some of the same issues as you. I would love it if you would for correspond with her, she would love to talk to someone who is “like her”.
    Thank you for taking the time to read this!
    Candi

  13. Where did you buy your “I am Awesome not despite my Autism but because of it.” t-shirt? I would really like one!

    • I designed it on Zazzle. There’s a Keep Calm and Love an Aspergirl one, too, and one that says Ask Me About My Special Interest (and it should then say… and brace yourself, haha). The one you saw isn’t in my store right now, but I can easily make it available again… the one I have saved is black/red/blue on a white shirt. Zazzle lets you change the colors and whatever else you want once you choose a design. If you haven’t used Zazzle to design before, just tell me what you want color wise and I’ll change them before I make it live again.

      • Okay, I finally tweaked those shirts and got them posted again. My store is http://www.zazzle.com/autisticspeaks
        They’ll be up by tomorrow (Saturday) night 🙂 They take time to process, as I’m sure you know. The one you mentioned DOES have a puzzle piece, but feel free to take it off! I have always thought of it as an equalizer… because every puzzle needs ALL its pieces, no matter how uncommon their shape or color. I’m a piece of this whole wacky world, an equal part to its wholeness. I was really surprised and yes, offended, when I read the meaning behind it. But I decided that no one should take away a symbol that can be empowering.

  14. I suspect that my daughter, a junior at Grove City College, may have Asperger’s. I’m afraid to mention it to her because of the stigma attached. She is completely socially withdrawn, has only one or two friends, is excentric, interested only in reading (fantasy literature), does not understand or follow social conventions, is overly and inappropriately affectionate with those she knows and painfully withdrawn from anyone she doesn’t know, and, oh yes, loves cats. I took a screening test from her perspective and she was clearly on the spectrum. What benefit would it be to her to bring this suspicion to her attention? Is there any point at this time in her life – 21 years old? What help can she get at GCC? Thank you for your encouraging blog. She, too, is an English major.

    • Hi… thanks for your message! Your email address came through with your comment; I’m going to follow up with you privately. I hope that’s okay. I don’t say very much about GCC and my experience there publicly.

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